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Auteur Collectif |
Documents disponibles écrits par cet auteur (1306)
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Successful discharge planning for children with complex respiratory needs is dependent on the collaborative efforts of all involved in the child's care. This includes not only those providing direct care to the child in hospital but extends to t[...]Article
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Collectif ; Seleman TA ; Bank D ; Kaalund I ; Dreyer PS | 2009Background : Persons with chronic respiratory failure due to neuromuscular disease (NMD) have been offered life-long ventilator support at home in Denmark since 1990. As a patient group they are small but increasing in size and some individuals [...]Article
Collectif ; Freymond N ; Sanson C ; Gindre D ; Philit F ; Pacheco Y ; Devouassoux G | 2009Although non-invasive ventilation (NIV) is a validated approach to treat acute hypercapnia in COPD, the impact of its long term maintenance, following an acute exacerbation is poorly evaluated. NIV could be associated with a reduced frequency an[...]Article
Collectif ; Dyton G ; Cullen A ; Harrison L ; Barry L | 2009Background The evidence supporting domiciliary ventilation in COPD remains tenuous. Here we present data from the Cardiff experience using a retrospective case note analysis. Data collection COPD was defined by spirometry as and FEV1/FVC ratioArticle
Survival after spinal cord injury is reduced due to respiratory morbidity especially for ventilated tetraplegics. This study of survival after mechanical ventilation following acute spinal cord injury compares those who wean with those who remai[...]Article
Collectif ; Vos W ; De Backer JW ; Daems D ; Claes R ; De Backer WA ; Germonpre P | 20094 COPD patients GOLD III and IV were hospitalized due to an exacerbation and received maximal pharmacological treatment(MPT) or MPT and non-invasive ventilation (NIV) (Bipap Synchrony, Respironics) for persisting hypercapnic ventilatory failure.[...]Article
This educational DVD is targeted specifically for the HMV children for their total home care management. It gathers home care tips from experienced users and hence provides a comprehensive home care DVD program : topics include preparation of th[...]Article
Collectif ; Bjelovic M ; Vukcevic M | 2009Aim : to determine frequency of PEG/NIV in ALS patients in Serbian and their influence on duration of ALS. Methods : A total of 254 (96 female and 158 males) ALS patients were initially diagnosed between 2003-2008 at the Institute of Neurology i[...]Reco PNDS
La HAS a mené une étude sur la maltraitance « ordinaire » en établissements de santé auprès des malades, de leurs proches et des professionnels. Ses enseignements ont été pris en compte dans le cadre de la nouvelle procédure de certification des[...]Article
Collectif ; Freitas US ; Cuvelier A ; Muir JF ; Letellier C | 2009Introduction : PSV is an effective treatment to relieve hypercapnic respiratory failure. However, poor patient-ventilator interactions may occur and may affect sleep efficiency and ventilation tolearnce. Our objectives were i) to identify asynch[...]Article
Collectif ; Weston N ; Scaffardi A ; Grey N ; Field D ; Miah H ; Williams AJ ; Hart N ; Davidson AC | 2009The Lane-Fox Respiratory Unit (LFRU) is a 14-bed unit with a specialist multidisciplinary team of physicians, nurses and therapists and an 'in-house' technical department. We currently manage 792 patients on HMV in the community. These include p[...]Article
Collectif ; Pinto T ; Barros C ; Lourenço C ; Winck JC | 2009Rationale : Patients with restrictive disorders and hypoventilation benefit from nocturnal Non-invasive Ventilation (NIV). If they have reduction of exercise tolerance ambulatory oxygen is normally prescribed. However may also benefit from NIV. [...]Article
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Reco PNDS
Any rare disease patient organisation that offers 1) information about a given rare disease or rare disease related topic or 2) psychological support to the patient, can be classified as a rare disease (RD) help line (HL). Traditionally, user en[...]Article
Context National registers on rare diseases give useful epidemiological data but they are limited by their feasibility, exhaustiveness, and cost. Our national reference center for rare lung diseases (RespiRare) developed, within a national progr[...]Article
Collectif ; Gaboury I ; Anderson P ; Collins D ; Keilty K ; Nicholas D ; Boyd J ; Banwell B ; Vajsar J ; MacLusky IB | 2009Background : The natural history of psychological dysfunction and quality of life in children with neuromuscular disease has not been defined. Given the expected clinical deterioration in these conditions and the significant improvements that ma[...]Reco PNDS
Afin d’intégrer pleinement l’emploi des travailleurs handicapés dans le domaine de la politique contractuelle des entreprises et d’en faire un élément à part entière de dialogue social dans l’entreprise et au sein de la branche, la loi handicap [...]Article
Collectif, Auteur ; Wallgren-Pettersson C, Auteur ; Laporte JF, Auteur | 2009Accès au résumé PubMed / to PubMed abstractArticle
Collectif, Auteur ; Wallgren-Pettersson C | 2009Accès au résumé PubMed / to PubMed abstractArticle
Accès au résumé PubMed / to PubMed abstractArticle
Collectif ; Guerra JF ; Gallardo JJC ; SierraIT ; Galo AP ; Gaspar I ; Duenas AE ; Jiménez JMG ; Ruiz EM ; Cuellar P ; Mochon A ; RuizLM | 2009Introduction : The aim of this paper is to describe how we use NIMV in the Costa del Sol Hospital in patients admitted for exacerbation of COPD Material and Methods : Study type : descriptive. Subjects : patients with COPD (FEV1/FVCArticle
Collectif ; Gonçalves C ; Nunes T ; Ferreira R ; BandeiraT | 2009Introduction : Obstructive sleep apnoea (OSA) is associated with significant morbidity. NIPPV has been recommended as a treatment option in children with complex situations, non eligible or waiting for surgery or in whom it was not successful. O[...]Article
Collectif ; Gonçalves C ; Barreto C ; Nunes T | 2009Successive respiratory tract infections in Cystic Fibrosis (CF) lead to progressive lung destruction with associated respiratory failure and subsequent supplemental oxygen need. Disease progression culminates with severe chronic respiratory fail[...]Article
Collectif ; Farias A ; Vera R ; Prado F ; Mancilla P ; Astudillo P | 2009Introduction : AVNI program integrates different levels of the Healthcare system, considering home and family as the platform to enable ventilatory assistance of children with nocturnal hypoventilation of diverse etiology. Their primary targets [...]Article
Collectif ; Muir JF ; Cuvelier A ; Lamia B ; Benhamou D ; Viacoze C ; Paillotin D ; Portier F ; Orange P ; Denis G | 2009A population of 446 patients with chronic respiratory failure (CRF) (age 10-90 yrs; F 39%, M 61%) under noninvasive ventilation (NIV) were retrospectively studied during a 10 years period. 43% were obstructive (OCRF), 36% restrictive (RCRF), com[...]Article
Collectif ; Hamp C ; Andrachuk B ; Turnbull M ; Nellis P ; Bautista C | 2009Introduction : There are many individuals on long-term ventilation (LTV) who are medically stable and motivated to reside in the community. Most are unable, due to a lack of resources, education, equipment and personnel. A component of the “pers[...]Article
Collectif ; Doherty Y ; Perry A ; Bayker E ; McGee L ; Grey N ; Boysen N ; Dicks C ; Cumming N ; Stewart K | 2009Introduction Advances in life prolonging and life saving interventions over the past 30 years have lead to a rapidly growing subgroup of patients who are unable to be weaned from mechanical ventilation in the long term. These patients, therefore[...]Reco PNDS
L'idée centrale de ce projet est de recueillir l'opinion des représentants de patients sur la future réglementation européenne et de savoir ce qu'ils pensent de l'existant.Article
Collectif ; Marquis F ; D'Anjou G ; Colombini L ; Laberge S ; Lapierre JG | 2009Vigorous coughing is a strong determinant factor of survival in patients with neuromuscular diseases (NMD). We measured the PCFR of 24 stable patients (DMD=9, SMA=5, others=10), with a median age of 14,3y (5,6-18,6y) and a forced vital capacity [...]Article
Collectif ; Davidson AC ; Jungbluth H ; Wraige E ; Hart N | 2009Body : In patients with DMD with optimal support, the average age of survival is 25 years .With improvements in outcome patients are expected to transfer into adult services. However, transitional care is not an established pathway for DMD. We h[...]Reco PNDS
Collectif | Paris : Ministère de l'Ecologie, de l'énergie, du developpement durable et de la mer | 2009La loi du 11 février 2005 reconnaît l’égalité des droits et des chances, la participation et la citoyenneté des personnes handicapées. Pilier essentiel de la loi, l’accessibilité doit répondre à toutes les situations de handicap et s’impose tout[...]Article
Collectif ; Ballard E ; Davidson AC ; Jungbluth H ; Wraige E ; Hart N | 2009The introduction of timely home mechanical ventilation (HMV) in DMD has been associated with increased life expectancy. In our centre, there is currently no specialist respiratory involvement in the paediatric service. We hypothesised that respi[...]Reco PNDS
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Collectif ; Szkulmowski Z ; Migdal M ; Andrzejewski W ; Drozd W ; Czajkowska-Malinowska M ; Opuchlik A | 2009Introduction : The rapid technological development, increasing number of elderly people and extension of indications, cause the increase in home mechanical ventilation (HMV) treatment in the Western European countries. Poland belongs to Eastern [...]Article
Collectif ; Renzetti D ; Avendano M ; Goldstein R | 2009This study was intended to demonstrate that the use of a ventilator attachment (VentLok®) in combination with staff, patient and family education can minimize ventilator disconnections in long term ventilated patients. Long term ventilated patie[...]Article
Collectif ; Kabitz HJ ; Burgardt V ; Walterspacher S ; Windisch W | 2009Objectives : Exercise capacity is reduced in obese patients due to disadvantageous respiratory mechanics that lead to dyspnea. Proportional assist ventilation (PAV) has the potential of unloading resistive and elastic burdens of the ventilatory [...]Article
Collectif ; Borel JC ; Pison C ; Pin I ; Similowski T ; Bermejo J ; Court-Fortune I ; Nesme-Meyer P ; Timsit JF ; Pépin JL | 2009The Respiratory Insufficiency Outcome (RIO) project consists in a French multicenter prospective cohort of patients with chronic obstructive pulmonary disease (COPD) undergoing domiciliary noninvasive positive pressure ventilation (NIPPV). We pr[...]Article
Collectif | 2009Tracheostomy tubes with a soft deformable wire-reinforced silicone shaft were introduced in the early 1990s as a solution to the problemof difficult tube fit. (Hyperflex®, BivonaMedical Corporation, Gary, Indiana, USA) Three patients with long t[...]Article
Collectif ; Harmer S ; Williams AJ ; Grey N ; Davidson AC ; Hart N | 2009Background : Weaning failure occurs in up to 10% of patients weaning from mechanical ventilation. Such patients are transferred to our centre as a step-down facility to ascertain if successful weaning can be achieved. Previously presented data d[...]Article
Collectif | 2009Aim : To observe the interactions between OSA (obstructive sleep apneea) and cardiovascular pathology and diseases. Materials and methods : articles from medical literature with theme OSA and cardiovascular risk and diseases with interest for pr[...]Article
Motor Neurone Disease (MND) is a progressive degenerative neurological disorder which is usually fatal within 2-3 years of diagnosis. The majority of deaths are as a result of respiratory failure and or respiratory tract infections. The Respirat[...]Livre
Mercredi 28 janvier 2009 LA RELATION À L’USAGER DANS LES PRATIQUES SOCIALES - Enjeux, tensions et apports de l’évolution de la place des « usagers » dans l’action sociale et médico-sociale / Laurent BARBE - Approche juridique de la relation d’ai[...]Article
Collectif ; Kieny P ; De Lataillade F ; Randrianarison F ; Vaillant P | 2009Introduction : following acute care unit discharge, it is often hard to find suitable facilities for patients with neuromuscular diseases who underwent tracheotomy and need ventilatory assistance. This is also true when they are looking for a re[...]Reco PNDS
Un guide pour toutes les questions concernant la scolarisation d'un enfant handicapé.Article
Background : Nocturnal non-invasive mechanical ventilation (NIMV) is considered an effective treatment for patients with obesity-hypoventilation syndrome (OHS). Aim of the study was to evaluate the short- and long- term effects on lung function [...]Article
Objective : To assess the utility of sniff nasal inspiratory pressure (SNIP) in the assessment of respiratory function in aymptomatic patients with late-onset inherited muscle disorders (IMD). Methods : 27 patients with no respiratory symptoms ([...]Article
Collectif | 2009The Children's Trust is a charity, and one of the main U.K. providers of specialist services for children and young people with severe acquired brain injury. As well as offering places at our school and our new further education unit for young p[...]Article
Collectif ; Mas LR ; Guerra JF ; Sierra IT ; Cebrian JJG ; Galo AP ; Gaspar I ; Duenas AE ; Jiménez JMG ; Cuellar P | 2009Introduction : The aim of this paper is to describe the specific problems during sleep, especially at night, in patients admitted for exacerbation of COPD and undergoing non-invasive ventilation (NIV) in conventional plant. Material and Methods [...]Article
Since 1982, the British Columbia's Children's Hospital Home Ventilation Program has cared for 326 patients with only four cases of pneumothorax, three occurring spontaneously off ventilation, and one occurring while the patient was on daytime no[...]Article
The CMP (Pediatric Medical Center) in la Maisonnée receives children with neuromuscular pathologies ventilated with invasive or non-invasive methods. The respiratory function of these children naturally deteriorates over time, and breathing deve[...]Article
Collectif ; Nicola W ; Alnumier A ; Ratrimoson T | 2009Introduction : Long termsurvival after intensive care of chronicle respiratory diseases exacerbations cannot be easily predicted in spite of many works carried out on the survival factors as the BODE index for the COPD. The aim of this retrospec[...]Article
Background : Several studies have provided convincing evidence that non-invasive ventilation can prolong survival in patients with ALS. Objectives : We wished to present survival data in ALS patients on home mechanical ventilation (HMV) and comp[...]Article
Collectif | 2009Aims : To observe the cardiovascular diseases and the effect of CPAP therapy on high blood pressure evolution at patients with SAS Methods : We used somnography registrations, medical records, resting ECG results, lab tests of 53 patients with S[...]Article
Introduction : For tetraplegics with chronic respiratory insufficiency, electrically induced diaphragm pacing is an alternative to long-term mechanical ventilation. This report summarizes a single site experience. Design : Prospective study of t[...]Article
Background : The rate of sleep-disordered breathing is high in patients with neuromuscular diseases. Diaphragm pacing stimulation (DPS) can successfully treat central apnea in complete tetraplegics, replacing mechanical ventilation. This reports[...]Article
Collectif ; Grey N ; Field D ; Williams AJ ; Hart N | 2009Although HMV is useful for the management of chronic respiratory failure complicating neuromuscular disease (NMD) and chest wall disease (CWD), the Eurovent survey (Lloyd-Owen et al, 2005) demonstrated differences in underlying diagnosis of HMV [...]Article
Collectif ; Renzetti D ; Goldstein R ; Avendano M | 2009West Park Healthcare Centre (WPHC), a 287 bed facility specializing in rehabilitation and complex continuing care, has a 28 bed unit for patients requiring long term ventilation, 4 beds for training and assessment as well as a home program super[...]Livre
Les maladies rares sont des affections le plus souvent chroniques, progressives, dégénératives, invalidantes, voire mortelles. Le droit d’accès à des soins médicaux de qualité n’est cependant pas toujours reconnu chez la plupart des patients sou[...]Reco PNDS
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Collectif | 2009Background : The Victorian Respiratory Support Service (VRSS) currently has 640 clients using ventilators and bi-level devices to manage respiration in a wide range of diseases resulting in respiratory failure. Approximately 5% have permanent tr[...]Article
Collectif ; van der Voort E ; RozeboomC ; Erasmus MC | 2009Introduction : Children with neuromuscular disease in which non invasive ventilation (NIV) is indicated are admitted to the Pediatric Intensive Care Unit (PICU) to adjust the ventilator. The average duration of admission was about 10 days before[...]Reco PNDS
Collectif | 2009Ce Guide de Référence Abrégé résume les lignes directrices basées sur les preuves relatives à la prévention et au traitement des escarres (ulcères de pression). Il a été développé grâce à un effort de collaboration de 4 ans entre l'European Pres[...]Reco PNDS
Témoignages croisés de professionnels de la santé et du social.Livre
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Collectif | 2009Central Hypoventilation Syndrome (CHS), is a rare disorder of regulation of ventilation first described in 1970. Patients exhibit a range of disability from hypoventilation in sleep to 24/24 hours apnea, with the "classical" presentation, that o[...]Article
Collectif ; Laub M ; Aune R ; Karlsson S ; Jonsson B | 2009Background : In spite of proven toxicity Polyvinyl Chloride (PVC) is still commonly used in medical devices. The added plasticizer Di (2-ethylhexyl) phthalate (DEHP) has proven to be a reproductive and developmental toxicant in animals and an en[...]Article
Patients commenced on long-term ventilation in our unit undertake a structured educational programme, including assessment of competencies, before they are discharged home. They are also given printed information to take with them. Over a twenty[...]Article
The Equilibre program is a multidisciplinary therapy program for children with obesity at the pediatric medical center La Maisonnée, started 1999. The purpose of this study was to established a correlation between childhood obesity and sleep dis[...]Article
Collectif | 2009Objective : To investigate the validity of transcutaneous CO2 assessed by TOSCA® in adult patients with respiratory failure during the night. Methods : Validity was assessed by comparing arterial CO2 (PaCO2) and transcutaneous CO2 (PtcCO2) in 15[...]Article
Objective : To examine the relative impact of inherited muscle disorders (IMD) on patients' quality of life using the Medical Outcome Study 36-item short survey (SF-36). Methods : 27 patients were assessed using the SF36. Scores for eight health[...]Article
Collectif ; Meijer PM ; Nieuwenhuis JA ; Wijkstra PJ | 2009Both volume- and pressure targeted long term non-invasive ventilation have been shown to be effective in patients with kyphoscoliosis with regard to an improved gas exchange. Aim : As it is unknown which kind of treatment is the most easy to imp[...]Article
Collectif ; Brinchmann BS ; Nielsen EW ; TollaliT | 2009Background : An important principle of the Norwegian public health care system is an equal access to health care, regardless of geographic location. In 2008 the overall prevalence of home mechanical ventilation (HMV) in Norway was 21/100 000. A [...]Article
Collectif ; Almeida JP ; Pinto S ; Pereira J ; Gouveia AO | 2009Background : Non-Invasive Ventilation (NIV) is an efficient method to treat respiratory failure in ALS patients. However, patients' adaptation to NIV is not always attained due to intolerance or poor compliance, frequently attributed to the bulb[...]Article
Background : Due to the growing use of home mechanical ventilation in amyotrophic lateral sclerosis (ALS), physicians are increasingly confronted by patients seeking discontinuation of therapy. Yet there are few systematic studies concerning the[...]VLM
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Sujets abordés : - Le foot fauteuil, un sport d'avenir - SarbacaneReco PNDS
Sommaire : - Anatomie et physiologie du système respiratoire - Fonctionnement du système respiratoire et contrôle de ce fonctionnement - Manifestations et causes de l'insuffisance respiratoire chronique grave - Les examens - La trachéoto[...]Publication AFM
Texte intégral de l'article Destinée aux malades et à leurs familles, la 5e Journée Nationale sur les maladies neuromusculaires, organisée par l'AFM en partenariat avec le réseau national des consultations spécialisées, a rassemblé, cette an[...]Publication AFM
Collectif, Auteur ; Reveillere C, Auteur ; Riou JC, Auteur | AFM-TELETHON | Savoir & Comprendre | 09/2008Texte intégral de l'article La première réunion du groupe de travail " Ergothérapeutes " s'est tenue le 1er février 2008. Vingt-quatre consultations pluridisciplinaires, réparties sur tout le territoire français y compris les DOM, étaien[...]Article
Collectif | 08/2008Pour en savoir plus : Une enquête sur le rapport au handicap des salariés a été réalisée par l'Institut Ipsos en collaboration avec le cabinet conseil en dynamique humaine Togeth'Art, la revue spécialisée ETRE Handicap Information et six grandes[...]Article
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Publication AFM
Texte intégral de l'article : Le 15 mars dernier, le Génocentre d'Evry a accueilli le 17e Congrès national annuel de l'association "Charcot-Marie-Tooth" ou CMT-France. Deux cent vingt personnes environ, dont les médecins et chercheurs p[...]Publication AFM
Collectif, Auteur | 03/2008Texte intégral de l'article La seconde journée des Entretiens de la Fondation Garches, en novembre2007, était dédiée à l'amyotrophie spinale infantile (ASI). Cette maladie est d'expression variable même au sein d'une fratrie. L'atteinte du[...]