Title: | La révélation du diagnostic de maladie génétique rare et ses conséquences du point de vue des personnes concernées |
Journal : | Journal de pédiatrie et de puériculture, 15, 3 |
Authors: | Leroy A |
Material Type: | Article |
Publication Date: | 2002 |
Size: | p. 145-152 |
Languages: | French |
Keywords : | announcement of diagnosis ; announcement of disability ; Bourneville tuberous sclerosis ; disease evolution ; facts and figures ; genetic diseases ; guilt ; health staff-family relationships ; patient and family information ; psychological adaptation ; psychological distress ; psychological support ; psychological trauma ; psychomotor retardation ; testimonies of patients and families |