Titre : | Myotonic Dystrophy Foundation : Toolkit |
Auteurs : | Collectif |
Type de document : | Reco PNDS |
Editeur : | Myotonic Dystrophy Foundation, 2015 |
Pages : | 124 p |
Langues: | Anglais |
Mots-clés : | anesthésie ; dystrophie myotonique ; ergothérapie ; étude longitudinale ; génétique médicale ; information du malade et de la famille ; information médicale ; kinésithérapie ; prise en charge thérapeutique ; tableau clinique |
Résumé : |
Some of the helpful pieces you’ll find inside the MDF Toolkit are:
• Valuable information compiled by MDF to educate individuals and their families, as well as detailed resources for medical providers. • Myotonic Dystrophy: The Facts. An easy-to-understand book for individuals and families written by the geneticist, Dr. Peter Harper, a preeminent expert on DM. • Medical Alert Card. A wallet-sized identification card for affected individuals to carry with them to alert medical providers about the condition, and especially the dangers of anesthesia. • Medical History Sheet. A document to record treatments, medications and health conditions that affected individuals can share with their providers. • Brochures with information on how to become a member of MDF and register with the Myotonic Dystrophy Family Registery, how to find additional news and resources via our website (www.myotonic.org), our online community (www.facebook.com/CareAndACureMDF) and other opportunities for community support and involvement. |
Lien associé : | Site Internet de l’organisation internationale « Foundation Myotonic Dystrophy » |