Title: | Parent-reported multi-national study of the impact of congenital and childhood onset myotonic dystrophy |
Journal : | Developmental medicine and child neurology, 58, 7 |
Authors: | Johnson NE, Author ; Ekstrom AB ; Campbell C ; Hung M ; Adams HR ; Chen W ; Luebbe E ; Hilbert JE ; Moxley RT ; Heatwolle CR |
Material Type: | Article |
Publication Date: | 2016 |
Size: | p 698 |
Languages: | English |
Keywords : | anesthesia ; cardiac features ; communication ; cross-sectional study ; disease burden ; fatigue ; interviews ; myotonic dystrophy type 1 ; psychological impact ; quality of life |
Abstract: |
Comment in:
Congenital and childhood-onset myotonic dystrophy: importance of long-term data in natural history. [Dev Med Child Neurol. 2016] |
Pubmed / DOI : | DOI : 10.1111/dmcn.12948 / Pubmed : 26510705 |
See also : |