Résumé :
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Communication n° 193 Background : There is few available data related to pain in neuromuscular disorders (NMD). The aim of our study is to appreciate the prevalence of pain, pain intensity (PI), disability levels and treatment satisfaction in a large sample. Methods: Out of 862 questionnaires, 511 patients with Duchenne (DMD), Becker (BMD), Steinert (MMD) or fascioscapulohumeral (FSHD) muscular dystrophy, metabolic myopathy, or myasthenia, answer a questionnaire assessing pain characteristics ( 11 points numerical pain intensity (PI), pain relief (PR), Brief Pain Inventory, MPQsf), and functional status. Results: During the last 3 months, 67,3% of the patients suffer pain. The mean number of day with pain is 18.4 Æ 15.1 days. The mean PI is 4,8Æ2,5. There is a difference of PI according to the NMD. The most intense PI is observed in metabolic myopathy and surprisingly in myasthenia. Only 3/4 pain patients consult a health professional with a mean of 1.4 GP and 1.9 specialist. Only 35,6% of the patient receive a pharmacological pain treatment. Two third of the patients receiving an analgesics have a significant PR. Physiotherapy is used by 89% and is judge to have a significant PR in 2/3 of the patients. 70% of the patient perceive a lack of attention to pain by medical doctor and 69% fear the pain analgesics addiction. Overall the pain management is judge satisfactory by 66% of the patients Conclusions : Our study indicate that pain is frequent in NMD. Pain Intensity is usually moderate. Patient satisfaction for pain treatment is satisfactory. There is limited doctor shopping in this population. Pain in NMD should however not be neglected. This population have inappropriate beliefs about pain treatment. Acknowledgments : Supported by grants of the Association Française Contre les Myopathies (AFM), Evry, France.
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