Résumé :
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Introduction : AVNI program integrates different levels of the Healthcare system, considering home and family as the platform to enable ventilatory assistance of children with nocturnal hypoventilation of diverse etiology. Their primary targets are : to diminish the morbimortalidad of children < 20 years; to contribute to the improvement of the health related quality of life, social and scholar reintegration; and to increase the capacity decisive of the welfare network. Objectives : To identify the given characteristics of beneficiaries of the Program and benefits. Material and methods : To describe in retrospective form the collected data of the entered children. Results : To December of the 2008, 235 children, 215 assets have entered. Age average 9 ± 5.2 years; 32% < 6 years. Eighteen have passed away (8%), and 14 (6%) have been registered. The pathologies that present/display are : Neuromuscular disease/Cifoescoliosis (ENM) 67%, DPC 19%, operated Mielomelingocele 5%, SAOS 5 % and Miscellaneous 4% . The given benefits are : AVNI with naso-buccal nasal mask/76%, training with valves of adjustable threshold ofmuscle respiratory 34%, BiPAP through tracheostomy 13%and 7%with conventional ventilators. The quality of life related to health (CVRS) of the children and family, presents/displays an increase in the 12 months of evaluation (p > 0,05). Discussion : The main cause of prolonged mechanical ventilation is the nocturnal hypoventilation by ENM, the AVNI is the used strategy but. The sum of benefits has improved the CVRS. Observed mortality ties to advanced states of the disease.
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