Titre : | How do I talk to my family about Pompe? |
Auteurs : | Collectif |
Type de document : | Reco PNDS |
Editeur : | Genzyme, 2012 |
Autre Editeur : | Genetic Alliance |
Pages : | 34 p |
Langues: | Anglais |
Mots-clés : | annonce du diagnostic ; article de type review ; famille ; information du malade et de la famille ; maladie de Pompe ; tableau clinique ; témoignage de malade-famille ; vie quotidienne |
Résumé : |
This booklet will help you talk to your family about Pompe. Every person with Pompe is different, and every family is different. So this booklet includes several different approaches to speaking with your family. Choose an approach that you think will work best for you.
p 2 - Pompe disease p 8 - Family health history and genetics p 12 - Living with Pompe p 18 - Talking about ABOUT Pompe p 29 - Resources and Glossary |
Lien associé : | Lien vers le texte complet |