Terms of use
Publisher
Myobase.org is a website published by the Documentation Service of AFM-Telethon, an association governed by the law of July 1, 1901, recognized as being of public utility, whose head office is located in Paris: AFM - Institut de Myologie, 47-83 boulevard de l'Hôpital, 75651 Paris Cedex 13 - Tel: +33 (0)1 69 47 28 28
This site is entirely funded by AFM-Telethon thanks to donations from the Telethon.
Website address: www.myobase.org
Contact email: myobase@afm-telethon.fr
Objective
Myobase is a bibliographic database intended for scientists, doctors, physiotherapists, occupational therapists, nurses, professionals in the medico-social sector, psychologists, students, all persons concerned by a neuromuscular disease.
Myobase aims to identify and make available documentary resources and French and international scientific, technical, medical and medico-social literature relating to neuromuscular diseases, in compliance with copyright and reproduction rights.
Publication Manager
Publication Director: Nathalie Sellier, as head of the Myodoc documentation department
Realization
This SIGB was created by PMB Services with PMB software.
PMB Services
ZA de Mont sur Loir - Château du loir - 72500 Montval-sur-loir - France
pmb@sigb.net - www.sigb.net
Copyright / intellectual property
In application of the French Intellectual Property Code and, more generally, international treaties and agreements containing provisions relating to the protection of copyright, the user of the Myobase.org site is obliged to:
- Not reproduce, summarize, modify, alter or rebroadcast, without the prior written authorization of AFM-Téléthon, any article, title, applications, software, logo, brand, information, illustration or photograph for any use other than strictly private. This excludes any reproduction for professional purposes or for mass distribution worldwide,
- Not copy all or part of the site onto another site, an internal company network or a social network,
- Not create a hyperlink to the Myobase site without the prior agreement of AFM-Téléthon. AFM-Téléthon cannot be held responsible for the content or products or services offered by sites to which the Myobase site is linked by hyperlinks or any other type of link.
Photo and video credits
AFM-Téléthon, AFM-Téléthon productions
Personal data
Transparency and rigor are strong values of AFM-Téléthon. They also apply to the protection of personal data collected on the myobase.org website.
The following information is provided to you so that you can learn about the commitments regarding the protection of personal data of AFM-Téléthon, 1 rue de l'Internationale 91002 Evry cedex, which acts as data controller for the processing of personal data mentioned in this document.
AFM-Téléthon is committed to a policy of respecting and maintaining high standards of ethics, particularly the protection of personal data.
On the myobase.org website, AFM-Téléthon implements personal data processing as data controller. The identity and contact details of AFM-Téléthon are specified in the legal notices above.
The purpose of this personal data protection policy is to inform you about how this data is processed by AFM-Téléthon, and the extent of your rights.
It may be subject to change depending on the applicable legal and regulatory context.
Why do we collect your data?
The personal data collected by AFM-Téléthon on the myobase.org website allows us to:
- provide you with services: responses to requests for information, sending documentation,
- offer you the best browsing experience on our website,
- carry out statistical analyses of visits and form fillings on our website,
- keep you informed of our news.
What types of data are collected?
We collect your personal data when you register on our website or subscribe to our newsletter.
When you fill out a form, the mandatory or optional nature of the personal data is indicated by an asterisk. This may include the following data:
- first and last name
- email address
When you contact us: we collect the date, contact method and reason for your request, etc. allowing us to respond to you as quickly as possible and direct your message to internal departments for a relevant and effective response.
We keep the history and, depending on the case, a transcription of our exchanges for better consideration of our future correspondence.
Who has access to your data?
- Under no circumstances is your data marketed or exchanged with other organizations (neither charitable nor commercial). It is only used by AFM-Téléthon and its research institutions.
- Authorized personnel of AFM-Téléthon and its contracted service providers, all bound by an obligation of confidentiality and security.
What are your rights and how to exercise them?
You want to:
- unsubscribe from our newsletters,
- delete your account on myobase,
send us your request by email to myodoc@afm-telethon. We acknowledge receipt of your request, your subscription is immediately interrupted or your account deleted.
Exercise all your rights
In accordance with the European Regulation of April 27, 2016 (GDPR) and the Data Protection Act of January 6, 1978, as amended, you have the right to access, rectify and erase your personal data, the right to limit or oppose their processing as well as the right to their portability.
To exercise your rights or for any questions regarding the personal data protection policy and in application of the General Data Protection Regulation, you can send a request accompanied by a valid proof of identity to the attention of our AFM-Telethon Data Protection Officer: dpo@afm-telethon.fr
You can also file a complaint with the CNIL.
Our partners and external links
The Myobase.org site offers many links to other sites, mainly official sites. AFM-Telethon systematically specifies which site you are invited to go to. Conversely, many sites promote AFM-Telethon on their own spaces.
However, these web pages, whose addresses are regularly checked, are not part of the AFM-Telethon portals. They therefore do not engage the responsibility of AFM-Telethon as to their content.
We recommend that you consult the personal data protection policy of these sites because their conditions may differ from those of AFM-Telethon. AFM-Telethon is in no way responsible for the processing of data by these other websites.
Contact and questions
For any request for information concerning the personal data protection policy of AFM-Telethon, you can contact the Data Protection Officer by email (dpo@afm-telethon.fr) or at the following address:
Data Protection Officer
AFM Telethon
1, Rue de l’internationale - BP 59
91002 EVRY cedex
Published on 01/10/2013 - Last update: 16/09/2024
This policy may change if the legal and regulatory context requires it as well as according to the doctrine of the CNIL.
It may also be subject to clarification depending on our organization and any questions you may have.
Myobase.org is a website published by the Documentation Service of AFM-Telethon, an association governed by the law of July 1, 1901, recognized as being of public utility, whose head office is located in Paris: AFM - Institut de Myologie, 47-83 boulevard de l'Hôpital, 75651 Paris Cedex 13 - Tel: +33 (0)1 69 47 28 28
This site is entirely funded by AFM-Telethon thanks to donations from the Telethon.
Website address: www.myobase.org
Contact email: myobase@afm-telethon.fr
Myobase is a bibliographic database intended for scientists, doctors, physiotherapists, occupational therapists, nurses, professionals in the medico-social sector, psychologists, students, all persons concerned by a neuromuscular disease.
Myobase aims to identify and make available documentary resources and French and international scientific, technical, medical and medico-social literature relating to neuromuscular diseases, in compliance with copyright and reproduction rights.
Publication Director: Nathalie Sellier, as head of the Myodoc documentation department
This SIGB was created by PMB Services with PMB software.
PMB Services
ZA de Mont sur Loir - Château du loir - 72500 Montval-sur-loir - France
pmb@sigb.net - www.sigb.net
In application of the French Intellectual Property Code and, more generally, international treaties and agreements containing provisions relating to the protection of copyright, the user of the Myobase.org site is obliged to:
- Not reproduce, summarize, modify, alter or rebroadcast, without the prior written authorization of AFM-Téléthon, any article, title, applications, software, logo, brand, information, illustration or photograph for any use other than strictly private. This excludes any reproduction for professional purposes or for mass distribution worldwide,
- Not copy all or part of the site onto another site, an internal company network or a social network,
- Not create a hyperlink to the Myobase site without the prior agreement of AFM-Téléthon. AFM-Téléthon cannot be held responsible for the content or products or services offered by sites to which the Myobase site is linked by hyperlinks or any other type of link.
AFM-Téléthon, AFM-Téléthon productions
Personal data
Transparency and rigor are strong values of AFM-Téléthon. They also apply to the protection of personal data collected on the myobase.org website.
The following information is provided to you so that you can learn about the commitments regarding the protection of personal data of AFM-Téléthon, 1 rue de l'Internationale 91002 Evry cedex, which acts as data controller for the processing of personal data mentioned in this document.
AFM-Téléthon is committed to a policy of respecting and maintaining high standards of ethics, particularly the protection of personal data.
On the myobase.org website, AFM-Téléthon implements personal data processing as data controller. The identity and contact details of AFM-Téléthon are specified in the legal notices above.
The purpose of this personal data protection policy is to inform you about how this data is processed by AFM-Téléthon, and the extent of your rights.
It may be subject to change depending on the applicable legal and regulatory context.
The personal data collected by AFM-Téléthon on the myobase.org website allows us to:
- provide you with services: responses to requests for information, sending documentation,
- offer you the best browsing experience on our website,
- carry out statistical analyses of visits and form fillings on our website,
- keep you informed of our news.
We collect your personal data when you register on our website or subscribe to our newsletter.
When you fill out a form, the mandatory or optional nature of the personal data is indicated by an asterisk. This may include the following data:
- first and last name
- email address
Your data is therefore stored and may be used:
When you contact us: we collect the date, contact method and reason for your request, etc. allowing us to respond to you as quickly as possible and direct your message to internal departments for a relevant and effective response.
We keep the history and, depending on the case, a transcription of our exchanges for better consideration of our future correspondence.
- Under no circumstances is your data marketed or exchanged with other organizations (neither charitable nor commercial). It is only used by AFM-Téléthon and its research institutions.
- Authorized personnel of AFM-Téléthon and its contracted service providers, all bound by an obligation of confidentiality and security.
What are your rights and how to exercise them?
You want to:
- unsubscribe from our newsletters,
- delete your account on myobase,
send us your request by email to myodoc@afm-telethon. We acknowledge receipt of your request, your subscription is immediately interrupted or your account deleted.
In accordance with the European Regulation of April 27, 2016 (GDPR) and the Data Protection Act of January 6, 1978, as amended, you have the right to access, rectify and erase your personal data, the right to limit or oppose their processing as well as the right to their portability.
To exercise your rights or for any questions regarding the personal data protection policy and in application of the General Data Protection Regulation, you can send a request accompanied by a valid proof of identity to the attention of our AFM-Telethon Data Protection Officer: dpo@afm-telethon.fr
You can also file a complaint with the CNIL.
Our partners and external links
The Myobase.org site offers many links to other sites, mainly official sites. AFM-Telethon systematically specifies which site you are invited to go to. Conversely, many sites promote AFM-Telethon on their own spaces.
However, these web pages, whose addresses are regularly checked, are not part of the AFM-Telethon portals. They therefore do not engage the responsibility of AFM-Telethon as to their content.
We recommend that you consult the personal data protection policy of these sites because their conditions may differ from those of AFM-Telethon. AFM-Telethon is in no way responsible for the processing of data by these other websites.
Contact and questions
For any request for information concerning the personal data protection policy of AFM-Telethon, you can contact the Data Protection Officer by email (dpo@afm-telethon.fr) or at the following address:
Data Protection Officer
AFM Telethon
1, Rue de l’internationale - BP 59
91002 EVRY cedex
Published on 01/10/2013 - Last update: 16/09/2024
This policy may change if the legal and regulatory context requires it as well as according to the doctrine of the CNIL.
It may also be subject to clarification depending on our organization and any questions you may have.