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 > MYOBASE > PSYCHOLOGIE > psychologie de la santé > qualité de vie
qualité de vieSynonyme(s)qol ;qdv quality of life |
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Avancées dans la maladie de Charcot-Marie-Tooth
Myoinfo (AFM-Téléthon), Vallat JM
Avancées de la recherche, Savoir & Comprendre, 2020, 34 p
A Prospective, Crossover Survey Study of Child- and Proxy-Reported Quality of Life According to Spinal Muscular Atrophy Type and Medical Interventions
Weaver MS, Hanna R, Hetzel S, et al.
Journal of child neurology, 2020
Mixed methods analysis of Health-Related Quality of Life in ambulant individuals affected with RYR1-related myopathies pre-post-N-acetylcysteine therapy
Capella-Peris C, Cosgrove MM, Chrismer IC, et al.
Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation, 2020
Factors associated with the type of mask used during nocturnal NIV in patients with neuromuscular disorders
Leotard A, Lebret M, Prigent H, et al.
Revue des maladies respiratoires, 2020, 37, 2, p 99
The validity and utility of the Cutaneous Disease Area and Severity Index (CDASI) as a clinical outcome instrument in dermatomyositis: A comprehensive review
Ahmed S, Chen KL, Werth VP
Seminars in arthritis and rheumatism, 2020
Patient Input to Inform the Development of Central Nervous System Outcome Measures in Myotonic Dystrophy
White M
Therapeutic innovation & regulatory science, 2020
Fatigue in myotonic dystrophy type 1: a seven-year prospective study
Peric S, Bjelica B, Bozovic I, et al.
Acta myologica : myopathies and cardiomyopathies : official journal of the Mediterranean Society of Myology, 2019, 38, 4, p 239
Understanding side effects of therapy for myasthenia gravis and their impact on daily life
Bacci ED, Coyne KS, Poon JL, et al.
BMC neurology, 2019, 19, 1, p 335
Long-term follow-up, quality of life, and survival of patients with Lambert-Eaton myasthenic syndrome
Lipka AF, Boldingh MI, van Zwet EW, et al.
Neurology, 2019
A critical review of patient and parent caregiver oriented tools to assess health-related quality of life, activity of daily living and caregiver burden in spinal muscular atrophy
Messina S, Frongia AL, Antonaci L, et al.
Neuromuscular disorders : NMD, 2019, 29, 12, p 940
Characterizing health state utilities associated with Duchenne muscular dystrophy: a systematic review
Szabo SM, Audhya IF, Malone DC, et al.
Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation, 2019
Qualité de vie - Un prédicteur de mortalité dans l’insuffisance respiratoire sévère : Quality of life: a predictor of mortality in severe respiratory failure
Reveillere C
Les Cahiers de Myologie, 2019, 35, HS2, p 49
Quality of life in refractory generalized myasthenia gravis: A rapid review of the literature
Garzon-Orjuela N, van der Werf L, Prieto-Pinto LC, et al.
Intractable & rare diseases research, 2019, p 231
Use of a wearable device to assess sleep and motor function in Duchenne muscular dystrophy
Siegel BI, Cakmak A, Reinertsen E, et al.
Muscle & Nerve, 2019
Estimation Of The Quality Of Life Benefits Associated With Treatment For Spinal Muscular Atrophy
Lloyd AJ, Thompson R, Gallop K, et al.
ClinicoEconomics and outcomes research : CEOR, 2019, 11, p 615
Assisted standing for Duchenne muscular dystrophy
Pedlow K, McDonough S, Lennon S, et al.
The Cochrane database of systematic reviews, 2019
Zoom sur... L'amyotrophie spinale proximale liée au gène SMN1
Myoinfo (AFM-Téléthon), Duguet C, Dupitier E, et al.
Zoom sur ..., Savoir & Comprendre, 2019, 130
Cross-Sectional Analysis of the Myasthenia Gravis Patient Registry: Disability and Treatment
Cutter G, Xin H, Aban I, et al.
Muscle & Nerve, 2019
Dystrophie musculaire de Duchenne : vers de meilleures compréhension et évaluation des déficiences du membre supérieur
Urtizberea JA
2019
Instruments for the Assessment of Behavioral and Psychosocial Functioning in Duchenne and Becker Muscular Dystrophy; a Systematic Review of the Literature
Hellebrekers DMJ, Lionarons JM, Faber CG, et al.
Journal of pediatric psychology, 2019
Individual dietary intervention in adult patients with mitochondrial disease due to the m.3243 A>G mutation
Zweers H, Smit D, Leij S, et al.
Nutrition (Burbank, Los Angeles County, Calif.), 2019, 69
Survey of the functional priorities in patients with disability due to neuromuscular disorders
Jerath NU, Simoens K, Mann D, et al.
Disabil Rehabil Assist Technol., 2019, 14, 2, p 133
Dystrophie musculaire de Duchenne et retentissement sur les aidants : une analyse de la littérature
Urtizberea JA
2018
Les services régionaux : 30 ans aux côtés des familles
Even G
VLM. Vaincre les myopathies, 2018, 185, p. 8-10
