Titre : | Eurordis policy fact sheet - Orphanet |
Auteurs : | Collectif |
Type de document : | Reco PNDS |
Editeur : | EURORDIS, 2010 |
Pages : | 2 p |
Langues: | Anglais |
Mots-clés : | étude transversale ; information médicale ; maladies rares ; médicament orphelin ; Orphanet |
Résumé : | Orphanet is a European reference portal for information and documentation on rare diseases (RD) and orphan drugs (OD). Orphanet serves to provide easy access to medically validated, comprehensive information improving knowledge and correct, timely diagnosis and appropriate care and treatment of patients with RDs. It was originally established in 1997 by the French Ministry of Health and the Institute National de la Santé et de la Recherche Médicale (INSERM) as a pilot project. Today it is a broad partnership of public and private institutions1 including short-term funding from the European Commission. |
Lien associé : | Site Internet EURORDIS, Rare Diseases Europe |