Title: | Parents' Experiences of Information and Decision Making in the Care of Their Child With Severe Spinal Muscular Atrophy: A Population Survey |
Journal : | Journal of child neurology |
Authors: | Beernaert K, Author ; Beernaert K ; Lovgren M ; Jeppesen J ; Werlauff U ; Rahbek J ; Sejersen T ; Kreicbergs U |
Material Type: | Article |
Publication Date: | 15/01/2019 |
Languages: | English |
Pubmed / DOI : | DOI : 10.1177/0883073818822900 / Pubmed : 30642225 |
N° Profil MNM : | 2019011 |
Link for e-copy: | http://www.ncbi.nlm.nih.gov/pubmed/30642225 |