Title: | The humanistic burden of Pompe disease: are there still unmet needs? A systematic review |
Journal : | BMC neurology, 17, 1 |
Authors: | Schoser B, Author ; Bilder DA ; Dimmock D ; Gupta D ; James ES ; Prasad S |
Material Type: | Article |
Publication Date: | 2017 |
Languages: | English |
Keywords : | clinical presentation ; daily life ; disease evolution ; enzymotherapy ; family caregivers ; late-onset Pompe disease ; meta-analysis ; Pompe disease ; quality of life ; reviews |
Keywords: | Caregiver burden;Daily living;Humanistic burden;Pompe;Quality of life; |
Pubmed / DOI : | DOI : 10.1186/s12883-017-0983-2 / Pubmed : 29166883 |
Link for e-copy: | http://www.ncbi.nlm.nih.gov/pubmed/29166883 |