Title: | The UK Myotonic Dystrophy Patient Registry: facilitating and accelerating clinical research |
Journal : | Journal of neurology, 264, 5 |
Authors: | Wood L, Author ; Cordts I ; Atalaia A ; Marini-Bettolo C ; Maddison P ; Phillips M ; Roberts M ; Rogers M ; Hammans S ; Straub V ; Petty R ; Orrell R ; Monckton DG ; Nikolenko N ; Jimenez-Moreno AC ; Thompson R ; Hilton-Jones D ; Turner C ; Lochmuller H |
Material Type: | Article |
Publication Date: | 2017 |
Size: | p 979 |
Languages: | English |
Keywords : | biomedical research ; clinical trials ; myotonic dystrophy type 1 ; patient registers ; United Kingdom |
Keywords: | Clinical trials;Myotonic dystrophy;Patient Registries;Trial readiness; |
Pubmed / DOI : | DOI : 10.1007/s00415-017-8483-2 / Pubmed : 28397002 |
Link for e-copy: | http://www.ncbi.nlm.nih.gov/pubmed/28397002 |