Title: | A qualitative study of perceptions of meaningful change in spinal muscular atrophy |
Journal : | BMC neurology, 17, 1 |
Authors: | McGraw S, Author ; Qian Y ; Henne J ; Jarecki J ; Hobby K ; Yeh WS |
Material Type: | Article |
Publication Date: | 2017 |
Languages: | English |
Keywords : | daily life ; function scales ; Hammersmith motor function scale ; interviews ; motor function scales ; motor skills ; quality of life ; SMN1-related proximal spinal muscular atrophy ; testimonies of patients and families |
Keywords: | Meaningful change;Patient perspectives;Qualitative;Spinal muscular atrophy; |
Pubmed / DOI : | DOI : 10.1186/s12883-017-0853-y / Pubmed : 28376816 |
Link for e-copy: | http://www.ncbi.nlm.nih.gov/pubmed/28376816 |