Title: | Information and treatment decisions in severe spinal muscular atrophy: A parental follow-up |
Journal : | European journal of paediatric neurology : EJPN : official journal of the European Paediatric Neurology Society, 20, 6 |
Authors: | Lovgren M, Author ; Sejersen T ; Kreicbergs U |
Material Type: | Article |
Publication Date: | 2016 |
Size: | p 830 |
Languages: | English |
Keywords : | assisted ventilation ; decision making (in medicine) ; experience of disease ; guidelines ; medical treatment ; parents ; patient and family information ; proximal spinal muscular atrophy type 1 ; proximal spinal muscular atrophy type 2 ; questionnaires ; Sweden |
Keywords: | Information;Parental perception;Spinal muscular atrophy;Treatment decision; |
Pubmed / DOI : | Pubmed : 27601065 / DOI : 10.1016/j.ejpn.2016.08.008 |
Link for e-copy: | http://www.ncbi.nlm.nih.gov/pubmed/27601065 |