Title: | Parents' Experiences and Wishes at End of Life in Children with Spinal Muscular Atrophy Types I and II |
Journal : | The Journal of pediatrics, 175 |
Authors: | Lovgren M, Author ; Sejersen T ; Kreicbergs U |
Material Type: | Article |
Publication Date: | 2016 |
Size: | p 201 |
Languages: | English |
Keywords : | children ; death ; end-of-life ; hospitals ; parents ; physician-family relationships ; proximal spinal muscular atrophy type 1 ; proximal spinal muscular atrophy type 2 ; psychological support ; questionnaires ; siblings ; Sweden |
Keywords: | bereavement;end-of-life care;location of death;neuromuscular disorders;palliative care;spinal muscular atrophy; |
Pubmed / DOI : | DOI : 10.1016/j.jpeds.2016.04.062 / Pubmed : 27241662 |
Link for e-copy: | http://www.ncbi.nlm.nih.gov/pubmed/27241662 |