Title: | Quantifying the burden of caregiving in Duchenne muscular dystrophy |
Journal : | Journal of neurology, 263, 5 |
Authors: | Landfeldt E, Author ; Lindgren P ; Bell CF ; Guglieri M ; Straub V ; Lochmuller H ; Bushby K |
Material Type: | Article |
Publication Date: | 2016 |
Size: | p 906 |
Languages: | English |
Keywords : | anxiety ; cross-sectional study ; depression ; disease burden ; Duchenne muscular dystrophy ; expenditure ; family caregivers ; Germany ; helper-helped relationships ; Italy ; loss of ambulation ; observational research ; psychological stress ; quality of life ; TREAT-NMD ; United Kingdom ; United States |
Keywords: | Caregiver burden;Informal care;Neuromuscular;Quality of life;Utilities; |
Pubmed / DOI : | DOI : 10.1007/s00415-016-8080-9 / Pubmed : 26964543 |
Link for e-copy: | http://www.ncbi.nlm.nih.gov/pubmed/26964543 |