Titre : | IFOPA - International Fibrodysplasia Ossificans Progressiva Association |
Type de document : | Site internet |
Editeur : | International Fibrodysplasia Ossifians Progessiva Association |
Langues: | Anglais |
Mots-clés : | éducation familiale ; fibrodysplasie ossifiante progressive ; information du malade et de la famille ; perspective thérapeutique ; recherche biomédicale ; site web |
Résumé : | The IFOPA's mission is to advance and support the Five Keys to a future without FOP. RESEARCH, the key to a treatment and cure. EDUCATION, the key to preventing misdiagnosis and finding more FOP families. ADVOCACY, the key to living independently with full equality. HOPE, the key to support, survival and community. CURE, the key to a better future for those with FOP & the people who love them. |
Lien associé : | http://www.ifopa.org/ |